6 Things I’ve Learned While Treating Lyme Disease

Lessons Learned While Treating Lyme Disease

Lyme Disease Treatment.

The process has been hard (which is an understatement).

Many days, I didn’t know if I could go on.

I’m not overdramatizing it, either.

It was that horrible.

I often felt lost and alone.

I knew God was there, but I wondered why I couldn’t feel close to Him anymore.

Brain fog was thick, and I felt like I was losing my mind.

I’ve finally gotten to a place where I’m a bit more stable, so I’d like to share a few thoughts on the treatment process.

6 Things I’ve Learned While Treating Lyme Disease:

1. I must be my greatest health advocate

Even with excellent doctors and people in my life who care about me, I realized early on that if I did not speak up for myself, I wasn’t going to be helped. Lyme Literate Medical Doctors know what they are doing when it comes to treatment, but they don’t know how it feels to be me. They don’t know the exact pain I’m feeling or how treatment is affecting me. Even before diagnosis, I learned that I had to keep prayerfully pressing for answers. Had I not kept asking questions and seeking information, I’m not sure what kind of shape I’d be in today.

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The Good and Bad of Support Groups for Chronic Illnesses

The Good and Bad of Support Groups for Chronic Illnesses

When I was first diagnosed with several chronic conditions, I felt lost and alone. It felt like nobody in my life understood what I was going through.

They tried.

I had a lot of well-meaning friends, but at the end of the day they just didn’t have the background to understand the magnitude of what I was experiencing.

So, to feel a little less alone, I turned to online support groups.

<<< If you’re looking for a support group to join, I recently started Christian Chronic Illness Support >>>

On Facebook, there are hundreds of groups for those suffering from chronic illnesses. I joined the groups and started reading about others’ experiences. Members of these groups got me. They could relate to what I was going through. While our symptoms may have been different, our experiences often looked similar. We each were facing some level of debilitation. Chronic illness was changing our lives.

After a while, though, being part of Facebook support groups began to grow draining. I’d see posts pop up in my newsfeed when I was just trying to think about other things. Sometimes, the discussions would bring down my mood. What, at first, was a place of support seemed to turn into a place that drug me down.

I thought about leaving all of the groups. I thought about not talking about illness anymore and just avoiding the subject altogether. But, still, I felt this sense of calling from God to connect with others who are suffering to help bring a little hope. It didn’t make sense for me to completely leave the groups when I desired to help encourage others. It was also good for me to keep learning about what others do for treatment so I can make educated decisions when talking with my doctor.

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What to Do When Others Don’t Understand Your Chronic Illness

What to Do When Others Don't Understand Your Chronic Illness

Dealing with a chronic illness that most people don’t understand can be isolating. It is discouraging when we can no longer live “normal” lives but everyone else we

know seems to be living life as usual.

It gets even more sad when the people who should be closest to us, like family, seem to disregard the pain we’re experiencing.

For me, living with Lyme Disease is complicated because of the misinformation out there about the disease. There’s a big difference between early diagnosed and chronic infections. Like others with different chronic illnesses, Lyme Disease patients often need to try many different treatment protocols before they find something that works. Symptoms come and go, and pain migrates. It’s hard to explain how you’re doing when things can change drastically in a short period of time.

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Making the Most of Life with a Chronic Illness

Making the Most of LIfe with a Chronic Illness

Life with a chronic illness can be incredibly hard. Most of us who face chronic health issues have one thing in common: our lives do not look the way they did before we got sick. No matter the level of debilitation, the symptoms we face change the way we function.

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