Something I find fascinating about life with Lyme Disease is that it looks different for each person. Each person uses different treatment protocols. Our routines change regularly as we add or take away various forms of treatment.
Some of us Lyme Disease patients work outside the home while others are not able to work. I’ve experienced many forms of working while treating Lyme. At some points, I worked full time. Other times, I did work for a full time job from home when I wasn’t well enough to be in the office. During the worst months with Lyme, I was mostly bedridden,homebound, and unable to work. Now I work part time and also do some other work from home.
I decided to document a day of my life while treating Chronic Lyme Disease to give you a glimpse into my life.
This particular day was off to a later, slower start after being unable to get quality sleep during the night. This was one of the more productive days. In the past, before making more progress with my health, I wasn’t able to do much reading or work on the computer. Now, on the better days, I’m able to do a lot more. Each day is different. Some days I exercise. Other days I need more time in bed. Some days I’m alone all day. Other days, my fiancé, Jonathan comes over. This is an average day in my life as I treat Lyme Disease and work on writing/blogging projects.
As I finished drinking my warm mug of lemon water a few moments ago, I smiled to myself, thinking about how different my life looks as a result of chronic illness.
It wasn’t a happy smile, but a smile of contentment.
I felt peace. And still do.
It’s funny how that happens.
I never in a million years would have thought I could be content spending my day in bed, eating a restricted diet, and constantly using various forms of treatment.
My adventurous, travel-loving self would have never chosen to stay put.
I loved to go. To serve. To experience all I could.
I still like those things, but caring for myself in the best ways possible means I have to put my desires on the back burner.
It’s true that I would rather not have spent the past two hours detoxing my body.
But it’s also true that God is good. I believe He knows. I believe He cares. And I believe He’s working.
Hello there, sweet reader!
I want you to know that I am so glad you are here!
Since our community has been growing in recent months, I wanted to write a blog post that tells a little bit more of the heart behind the writing on this site.
My name is Emily Lofgren. I’m 26 years old, and I am currently treating Lyme Disease, co-infections, Pyroluria, Hashimoto’s Thyroiditis, and more. Life with chronic illness has been a hard journey for me. I’ve hard periods of times when I wanted to give up, but there was always this deeper, lasting hope within me as the Holy Spirit worked to keep me aware of His presence.
I am a Christian. I love the Lord and desire for my life to reflect Christ. My goal in writing here is to help others who are facing similar life experiences with chronic illness. I want those who are hurting to know that they are not alone and that the Lord will meet them in the midst of the pain.
A little over a year ago, I released an eBook called Finding Hope Through the Fog. It shares about my struggles with chronic illness and what it meant to turn to God when it felt like things are hopeless. I’d love to give you a free copy!
The whole process of starting Lyme Disease treatment is overwhelming! Information can be conflicting, leaving you unable to figure out what will actually help as you work toward stability.
Lyme Disease is a complex condition. There’s usually a lot more than just Lyme going on in your body if you’re experiencing a whole list of symptoms.
(Before we go any further, I want to make the disclaimer that I am not a medical professional and am unable to diagnose, prescribe a treatment plan, or give medical advice. All information here is informational and is from my experience in treating Lyme Disease.)
Throughout the process of treating Chronic Lyme Disease, I’ve learned a bit about the things I should and shouldn’t do during treatment.
I wrote this blog post to tell you a little bit about the things I did wrong when beginning treatment for Lyme Disease.
I’m not naturally someone who likes rest.
Some people like to take naps and lounge. I often wish I were like them! It would be nice to be able to focus on a Netflix marathon without getting the itch to go do something else. It would be great to be free of thinking of the next thing I would like to be doing.
I don’t mind curling up in a blanket on the couch, but I’d rather be reading a book than watching a movie. If not reading, I would prefer to be writing or brainstorming for a new project. I am all for being cozy, but I like to do it with purpose.
Many days, I wish that resting came naturally to me – that I was someone who could easily watch hour after hour of TV shows to pass the time. When I feel miserable from the pain, fatigue, and brain fog that come from managing several chronic illnesses, I would love to just veg out on the couch and enjoy it!
I’m not a good rester because I desperately want to be doing something. I like to be involved in activities. I like doing work that matters, and I am not very good at stopping.
Have you ever felt this way?
What happens when those of us with chronic illnesses have great intentions but the illnesses we face stop us in our tracks?
A life with debilitating chronic illness can be isolating.
I know this firsthand.
If you’re reading this post, you may also understand the isolation that comes when chronic illness keeps you from living what many would consider a “normal life.”
In this rough season of treating Lyme Disease and other chronic health conditions, the majority of my time has been spent in bed.
At some points, I could barely leave my apartment once a week. My boyfriend would come by with groceries or supper to help get me through the time until I had enough strength to make it out again. Occasionally, another friend would stop by to visit or bring a meal.
I had interaction, but it wasn’t often.
Long weeks of being alone can take a toll on a person.