A Day in the Life of a Lyme Disease Patient

A Day in the Life of a Lyme Disease Patient

Something I find fascinating about life with Lyme Disease is that it looks different for each person. Each person uses different treatment protocols. Our routines change regularly as we add or take away various forms of treatment.

Some of us Lyme Disease patients work outside the home while others are not able to work. I’ve experienced many forms of working while treating Lyme. At some points, I worked full time. Other times, I did work for a full time job from home when I wasn’t well enough to be in the office. During the worst months with Lyme, I was mostly bedridden,homebound, and unable to work. Now I work part time and also do some other work from home.

I decided to document a day of my life while treating Chronic Lyme Disease to give you a glimpse into my life.

This particular day was off to a later, slower start after being unable to get quality sleep during the night. This was one of the more productive days. In the past, before making more progress with my health, I wasn’t able to do much reading or work on the computer. Now, on the better days, I’m able to do a lot more. Each day is different. Some days I exercise. Other days I need more time in bed. Some days I’m alone all day. Other days, my fiancé, Jonathan comes over. This is an average day in my life as I treat Lyme Disease and work on writing/blogging projects.

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5 Ways to Enjoy Thanksgiving with Lyme Disease

Thanksgiving and Chronic Illness

When you’re sick with Chronic Lyme Disease, everything in life can be a little overwhelming!

I know how it goes.

I’ve been there.

Some days, I’m still there.

There’s so much to think through, plan, and do to keep symptoms under control. And even then, it can be a tossup as to whether treatment is actually going to make you feel better. A lot of times, you feel worse before you feel better because of Herxheimer Reactions. It’s tough (to say the least)!

So normal things like celebrating Thanksgiving with your family or friends can seem daunting. If you had previously been the one to host the festivities, the idea of cooking, cleaning, and opening your home for others can be enough to cause panic. If you usually travel for Thanksgiving, that can add another layer of challenges.

No matter what kind of Thanksgiving plans you usually partake in, I’ve put together a short list of things to help you to enjoy Thanksgiving while you live with Lyme Disease.

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The Blessing of Delayed Gratification

Jonathan and Emily Ryan - Chronic Illness Blogger

We live in a culture where instant access is expected.

We have the ability to obtain knowledge about almost anything right at our fingertips.

If we’re hungry, it doesn’t take more than a swing though the fast food drive thru to curb our cravings.

Waiting is begrudged.

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Let’s Find Hope Amidst Chronic Illness

Christian Chronic Illness Resources

Hello there, sweet reader!

I want you to know that I am so glad you are here!

Since our community has been growing in recent months, I wanted to write a blog post that tells a little bit more of the heart behind the writing on this site.

My name is Emily Lofgren. I’m 26 years old, and I am currently treating Lyme Disease, co-infections, Pyroluria, Hashimoto’s Thyroiditis, and more. Life with chronic illness has been a hard journey for me. I’ve hard periods of times when I wanted to give up, but there was always this deeper, lasting hope within me as the Holy Spirit worked to keep me aware of His presence.

I am a Christian. I love the Lord and desire for my life to reflect Christ. My goal in writing here is to help others who are facing similar life experiences with chronic illness. I want those who are hurting to know that they are not alone and that the Lord will meet them in the midst of the pain.

A little over a year ago, I released an eBook called Finding Hope Through the Fog. It shares about my struggles with chronic illness and what it meant to turn to God when it felt like things are hopeless. I’d love to give you a free copy!

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When You Wish You Could Change Your Past

When You Wish You Could Change Your Past

Do you ever wish you could take back something you said?

Do you think about what would have happened had you done something differently?

Do you hold onto regrets?

When You Wish You Could Change Your Past

Holding onto the regrets of my past keeps my mind in a place of frustration. It keeps thoughts swirling and then spiraling until I convince myself that everything in life is horrible. I know it’s not, but when you combine the neurological symptoms of Lyme Disease and co-infections with normal insecurities that people face, I can quickly get into a place of deep, deep melancholy. This kind of mentality isn’t healthy.

When I hold onto things I did wrong and think about ways I didn’t “measure up,” I miss out on the present. Not only that, but negative feelings regarding my past keep me from embracing the woman God created me to be.

Throughout my time of living with chronic illness (pre and post diagnosis), I have made a lot of mistakes. I’ve said and done things that were not kind. I became the needy person I never imagined I would be. I tried to control in whatever ways I could because nearly everything in my life was falling apart.

On a lot of days, I wish I could change my past. I wish I could go back to the hardest moments with the knowledge and assurance of God’s goodness that I now have to tell myself that everything is going to be okay.

I wish I could take back the things I said on days when symptoms were the worst.

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This past weekend, my boyfriend, Jonathan, and I spent a full day together. We had a wonderful time talking, laughing, cooking lunch together, shopping, and then going out for dinner. It was so much fun! It was the first date we had in a quite a while, so I had been looking forward to it all week.

At the end of the night, though, we realized we may have pushed things a little far with my energy levels. By the time he brought me home, I could barely keep my eyes open. I didn’t have enough strength to walk up the stairs to my room, so Jonathan had to carry me.

The overexertion from Saturday made Sunday a hard day. I was an emotional wreck. Pain was flaring, anxiety was taking over, and I was growing discouraged about my current life situation.

In all of my struggling, I started to question Jonathan’s love for me (even though he probably told me he loved me 100 times the day before). I became the insecure person that I don’t like.

The whole day was filled with a roller coaster of emotions – from insecurity, to regret, to feeling secure again in Christ, to feeling ashamed, and so on.

I wished more than ever that I could just erase the past two days and start over fresh. If I had a second chance, I wouldn’t have exerted myself so much on Saturday. I wouldn’t have even opened my mouth on Sunday. I would have detoxed more. The whole situation would have been different.

But that’s not the way life works, is it?

Once each day is over, there is a new day. We can’t go back and change the past, but we can make choices as we move forward.

On Monday, after the fogginess began to clear and I could look at the situation from a healthier standpoint, I had to come to terms with the fact that I couldn’t change the events of the weekend. I went to God to repent of my sin and ask forgiveness. I had already profusely apologized to Jonathan on Sunday throughout the cycles of craziness, but had a deeper understanding of the situation come Monday.

I had to let go of the weekend in order to move forward. It wasn’t easy. I still have a deep sense of sadness about my words and how they affected Jonathan, but I can’t dwell on the past and be who God created me to be.

Here’s what we need to remember during times when we wish we could reverse the past:

1. There is no condemnation for those who are in Christ Jesus!

I love this truth.

Romans 8:1-2 tells us:

“Therefore, there is now no condemnation for those who are in Christ Jesus, because through Christ Jesus the law of the spirit of life set me free from the law of sin and death.” (NIV)

When we are followers of Christ, we don’t have to worry about being condemned for our sin. Christ has already pain the ultimate price.

2. God doesn’t waste anything.

Romans 8:28 is a verse that has been a constant reminder of God’s love throughout many seasons of my life.

“And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” (NIV)

From walking forward in faith to live overseas in Asia, to dealing with family disagreements, to enduring life with chronic illness, I have remembered that God works in everything. He uses every situation to draw us to himself so that we can rest in His presence. He has a plan for our ultimate good, even if we may not be able to understand it at the time. He desires for us to come to Him so we can have true hope! He doesn’t waste a thing!

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If you’re struggling with regrets of your past or are looking for more support on your journey with chronic illness, please know you don’t have to walk through this tough season alone! Grab your free copy of my eBook, Finding Hope Through the Fog, and join our email community of hope!

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chronic illness self care and inspiration