Does Anyone Understand? My Battle With Lyme Disease

My Battle with Lyme Disease

Tears fall down my cheeks nearly every day. From the pain, to the intensified symptoms during die-off reactions, to the emotional overload of it all, I am left feeling broken and alone.

I want to hide. I want to run. But, I don’t even know where to go.

Plus, my legs won’t carry me very far.

Each day I battle with physical, mental, and emotional wounds that come with fighting chronic Lyme Disease and co-infections.

I never know how I will feel from one minute to the next, so life is almost impossible to plan.

Constantly weighing the pros and cons of each daily task, I must determine what is necessary to complete and what I need to do for my mental health. There’s not enough energy to go around to function like a normal human being, so sacrifices are made for the sake of treatment.

When I have a good day, I can’t even fully embrace it because if I try to do everything I’d like, I know that the next two days will be spent in bed recovering.

To make matters worse, on the outside, to the world around me, I look like your average twenty-five year old. I don’t always look sick, but inside there’s a war being waged on all systems of my body.

My Battle With Lyme Disease

One of the hardest parts of facing this disease is that others don’t understand. Often times, even those with the best intentions and godly motives underplay the significant nature of Lyme Disease.

And while I wish that everyone understood how difficult life is for those with Lyme and other chronic illnesses, I take comfort in knowing that there is someone who knows our pains and will love us through it all.

Even if I feel misunderstood, I can be comforted by the fact that Jesus knows.

He knows.

Just think about the significance of that.

The author of Hebrews writes,

For we do not have a high priest who is unable to empathize with our weaknesses, but we have one who has been tempted in every way, just as we are—yet he did not sin.

-Hebrews 4:15 (NIV)


Jesus can understand our weaknesses and struggles. He came to this world in human form as fully God and fully man. Then, He died in our place, taking all the sins of the world on Him. Jesus can truly relate to our struggles because He experienced them.

Next we read,

Let us then approach God’s throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.

-Hebrews 4:16 (NIV)


Because we know that Jesus is understanding of our pains, weaknesses, and struggles, we can turn to Him, confident of His provision in our time of need.

During my darkest days, when I feel like everything is going wrong and nobody understands, I must remember the precious gift I have in Jesus.

No matter the struggles or pains we experience in this world, we don’t have to endure them alone.

Jesus is there for us. And He empathizes, meeting us in the pain.

He understands.

Being misunderstood with chronic illness

13 thoughts on “Does Anyone Understand? My Battle With Lyme Disease

  1. Hi Emily. I am so encouraged by reading your story and your comments along with your strong faith in our Lord. I too have chronic Lyme’s and it has been a long heartbreaking journey but I too praise Him for the good days and just knowing He understands, cares and will always be there for all of us. Thank you for putting this site out and your desire to share the journey! God bless you.

    1. Rosanne, I’m so sorry to hear you’re also facing the difficulties of Lyme. It really is a rough road to walk. Glad to hear that you continually press into the Lord and know that He know the pain you’re experiencing and is there for you! :)

  2. Thank you for writing this. I have lyme and have been in bed all day. I did drive to my daughters meet the teacher because I’m tored of them having to miss things and or me cancel our plans because I don’t feel good or have the energy. I did have a decent day yesterday so I did a lot with them so that’s partly why I’m struggling so much today so I’m praising the Lord for yesterday and working hard to keep the enemies lies from beating me down today. thank you for writing even when it’s hard and for giving God the glory through it all.

    1. Hey Andrea! Thanks so much for your comment and for sharing how you’re doing. What you shard about hating to miss things or cancel plans is so relatable. Love that you’re still praising the Lord for the good day you had. We’ve got to keep the enemies lies out of our thoughts and continue to rest in truth. The lies can be incredibly deceptive! Praying for you right now!

  3. This was very encouraging! I can identify with it, for sure, but it is so refreshing to see the hope that we have, and the grace, love, and mercy God has for us. :)

  4. Dear Emily,
    Oh, how I can identify with all of this. What wonderful thoughts about our Creator. Keep encouraged. I understand what you are going through as I am so often in tears myself due to struggles with Lyme and chronic illness. Gentle hugs. Valerie

    1. Hi Valerie! Thanks so much for reading. :) I wish none of us had to go through all of this, but I do have to say I’m thankful that I know God more now as a result of where I am at with Lyme. My prayer is that others with chronic illness will be able to have a greater sense of who He is and will be able to rest in His loving arms.

  5. Emily you are so right. With God battling Lyme is possible. Without Him there is no hope. During my battle I have been so low that I felt God was not there. He was silent. He was waiting for me to process things and always sent someone to either encourage me or pick me up. Stay strong Emily. When you are down you can only look up. Rachel and I are here for you.

    1. Amen!! Yes, with God we can have hope in our battles with Lyme and other chronic illnesses. Thanks so much to you and Rachel for being there for for me! Lots of love!

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