Living with a chronic illness, where each day is a battle, can wear on a person. Those with chronic illnesses have to manage a lot! Finding relief from symptoms while facing a chronic illness includes far more than just a little extra rest.
For many people I’ve met in the chronic illness community, their treatment protocols have included dietary changes, an extensive list of supplements and prescription medicines, detox methods, rest, exercise, prayer, meditation, use of essential oils, and more. There’s often a mix of traditional and herbal treatment. Because each person’s body is different, the treatment that works for them will be individualized, even if they have similar conditions. It’s a matter of trial and error until they can find the right system.
I’m at the place in my treatment of Lyme, co-infections, Hashimoto’s Thyroiditis, etc. where I am worn down and need serious rest in addition to my current treatment protocol. I’ve been burnt out and depressed, feeling like I’m constantly on the verge of drowning. Stress and feelings of unmet expectations take me into a dark place where I feel like I can’t go on.
Because I’ve felt so terrible over the past several weeks, I’ve been reflecting on what I actually need in order to get better. What I’ve learned through personal reflection and prayer is that the most crucial thing my body needs right now is for me to be kind and give myself grace.
Lyme Disease, huh?
That’s one of the illnesses I have. You may be reading this because you have Lyme Disease or you think you might have Lyme Disease.
Lyme Disease can be difficult to diagnose but will affect every area of your life.
It’s utterly miserable. If you have Lyme or think you have it, then I am deeply sorry. I wish you weren’t going through this. I wish none of us had to deal with this pain. (I’d also love to join you in finding hope in this rough season!)
My Lyme Disease story is not uncommon.
I cannot recall a specific tick bite that spurred on all of these problems, however, growing up, my family went camping regularly and I was bitten by ticks. I never knew much about Lyme Disease. Now that I’m older and have learned more, I found out that a place my family would regularly camp produces a lot of Lyme Disease cases.
When putting the pieces together with my Lyme Literate Medical Doctor (LLMD), we have come to the conclusion that I likely contracted Lyme Disease and co-infections as a teenager.
In high school, I struggled with fatigue, mood swings, rage, weight fluctuations, depression, suicidal thoughts, and problems with concentration. I began to act out in ways like never before. My grades began to slip a little and overall I had a harder time focusing in school. My driven personality ended up carrying me through to graduation and college, but it was not without a lot of anger and heartache. I didn’t know what was happening to me. I often felt like I couldn’t control myself. (For a lot of high school I was also on Clindamycin for acne, which I now know also treats Lyme!)